You Don't have to have a lump to have Breast Cancer!
Help us make
NATIONAL INFLAMMATORY BREAST CANCER AWARENESS DAY
Fighting 4 the Tatas Breast Cancer Organization, a California 501(c) (3) Non-Profit organization, is joined by the Inflammatory Breast Cancer Research Foundation, the IBC Foundation and its founder, Patti Bradfield and Dr. Massimo Cristofanilli, M.D, FACP Professor of Medicine, Associate Director of Translational Research and Precision Medicine department of Medicine-Hematology and Oncology at the Robert H. Lurie Comprehensive Cancer Center Feinberg School of Medicine.
As a collective we request that the President of the United States, the Committee on Energy and Commerce, the Secretary of Health and Human Services (HHS), and all Members of the United States Congress, consider our petition for a National Day for Inflammatory Breast Cancer (IBC).
What is Inflammatory Breast Cancer (IBC)?
Inflammatory breast cancer (IBC) is among one of the rarest and most deadly forms of breast cancer. It tends to strike younger women, is aggressive and difficult to treat. Inflammatory breast cancer is treated differently than other breast cancers. Inflammatory breast cancer (IBC) is also known as
Why do we need an IBC Day?
Inflammatory breast cancer (IBC) is quite different from any other type of breast cancer because instead of presenting with a lump that can be detected by mammogram, it usually is seen in a matter of a few weeks with redness and swelling. Statistics are not very accurate and studies have been made difficult by the clinical definition of IBC. This is a much higher-mortality disease, usually between 40% and 50% survival with a high risk of recurrence in the first 2 to 3 years.
We need to improve physician and the public education. We need a definitive diagnosis. We need to encourage research of inflammatory breast cancer.
Inflammatory Breast Cancer continues to struggle to get attention from the medical community. This lack of attention and education about IBC manifests itself in the worst way when it comes to the diagnosis and treatment of this deadly disease. Click here for more information.
Another reason for an IBC day!
1. You have been told: Mammography is the best method for early detection of Breast Cancer! Not true for IBC. Inflammatory Breast Cancer does not present with a lump in most cases and therefore is usually missed during a mammogram.
2. You have been told: Early detection gives the best chance for Breast Cancer patients to beat the disease! Not true for IBC. Inflammatory Breast Cancer does not allow for early detection because it is found within the skin and often is misdiagnosed as an infection. By the time the symptoms worsen to the point of a biopsy being ordered, the cancer has advanced to stage 3B or worse and death is usually only a matter of time. Click here for more information.
3. You have been told: Breast Cancer is a disease that older women are diagnosed with and you need not be concerned until after the age of 40! Not true for IBC. There are multitudes of scientific data and physician written papers showing that the ages of women being diagnosed with IBC are getting younger and younger! Many women have been diagnosed during their child bearing years, and a few in their teenage years, the youngest at age 12! Click here for more information.
4. You have been told: Your diagnosis (Pathology) of Breast Cancer is called Locally Advanced, Invasive Ductal Carcinoma or High Grade Infiltrating Ductal Carcinoma (Stage 3b or higher)! You have NOT been told: that the clinical name of these cancers is Inflammatory Breast Cancer. The clinical name of IBC makes the aforementioned diagnosis extremely time sensitive. Without knowing the Clinical name you cannot get disability but there is government assistance immediately available to those who are diagnosed with IBC. It’s sad to think that many people have missed out on disability assistance because they were not aware of this fact. Click here for more information.
A typical example follows: A patient (male or female) complains of symptoms (swollen, itchy and painful breast) to their family doctor. Most often, the doctor does not recognize this as cancer. Typically a mammogram is ordered and comes back negative. The doctor does not feel a lump and therefore diagnoses the problem as an infection (although a fever is required to accompany the symptoms for it to be an infection) and prescribes antibiotics. The patient is relieved that cancer is not detected, and then spends the next few weeks allowing IBC to spread further and guarantee a much worse outcome for the patient. There are even cases when the symptoms worsened but because the doctor was ignorant of IBC and had not been trained to look for it, more antibiotics are prescribed and the patient´s fate is all but sealed. Click here for more information from a doctor’s perspective.
This type of experience is completely unacceptable and could be reduced, if not eliminated, if the Breast Cancer community would require Continuing Medical Education (CME) for medical professionals who come in contact with these symptoms first (general practitioners, family doctors, gynecologists, nurses, etc.). Mandatory CME´s that include this information would educate the medical community and begin the process of making early detection possible for Inflammatory Breast Cancer.
Several years ago, Patti Bradfield, Founder of IBC Foundation, U.S. Senator Patty Murray (WA) and U.S. Rep Carolyn McCarthy (D-NY) teamed up and presented a resolution for Inflammatory Breast Cancer to the United States Congress. The resolution was not passed, but its introduction set the stage for what Fighting 4 the Tatas Inflammatory Breast Cancer Organization is continuing today.
In October, many young women and men are asked to put on the color pink and march/run for their loved ones, or friends who are dealing with or have dealt with breast cancer. Ironically, far too many of these same participants have never heard of Inflammatory Breast Cancer. It is criminal to allow the unsuspecting public to remain uninformed about this deadly disease.
What YOU can do!
In response to this, Fighting 4 the Tatas Breast Cancer Organization is reaching out to those who are fighting Breast Cancer of any kind, to the loved ones and friends of Breast Cancer patients, co-workers and acquaintances to activists/organizations. Contact your politicians, your Congress men and women and your Senator's; your local legislators and to the pink wearing public at large in an effort to garner support for making October 3rd the National Inflammatory Breast Cancer Day (IBC Day)! It is time to hold those responsible for keeping IBC a secret, accountable. Medical education must be introduced and required for all licensed medical professionals and the public must be made aware of Inflammatory Breast Cancer.
October has been set aside for Breast Cancer Awareness! At least one day (October 3rd) should be dedicated to the deadliest breast cancer of all, Inflammatory Breast Cancer!
YOU can help make this a reality by joining us and signing this petition to make October 3rd – National IBC DAY!
Please JOIN US!